Good news! I've enjoyed another year and a half of good health
and I've been making the most of it. Feeling that the European
adventures that helped me recover my non-sick identity were not over, I
decided to spend the 2013-2014 academic year as an English teaching
assistant in Madrid, Spain. France is like a second home to me so
adapting to life in Spain was the most challenging experience I have had
since being sick. I appreciated the opportunity to devote my energy and
anxieties to something not related to health. By the end of my
nine-month stay in Madrid, I had become comfortable with Spanish culture
and reluctantly moved back to Washington, DC to look for a job that
better aligned with my studies. A month ago, I accepted a full-time job
offer from a company in California. I feel incredibly fortunate to have a
bright future that I would never have imagined just four years ago.
In
August, I went backpacking in California with my family for a week. It
was my first remote hiking trip since my illness and it was both scary
and affirming. Backpacking food is not particularly j-pouch friendly
(last summer, I got a blockage on the hike out from a short backpacking
trip because I ate a really cold power bar that I couldn't digest) and
our route took us far from any medical help. In the event of a serious
blockage, someone would have had to hike 10 miles and up 2,000 feet of
elevation gain to get a helicopter from the National Park Service.
Waiting that long with the pain that accompanies blockages would have
been torture. Nevertheless, I decided to go ahead. I try not to let
hypothetical medical complications dictate my life or prevent me from
participating in activities, like backpacking, that are important to me.
My family was very supportive and made sure that I had the most j-pouch
friendly food possible. The trip was fantastic and encouraged me to be
adventurous in the future. Although getting up nightly was not a picnic,
the wilderness is also a great place for j-pouches because behind every
boulder is a potential bathroom. I really impressed my family with my
quick trips. If only they were so lucky!
Surprise surprise...I completely fell apart and catastrophized about a trip to the ER in the event I did have pouchitis and couldn't get antibiotics. I am on my parents' health insurance until I begin my new job, and outside of the San Francisco Bay Area I only have coverage for ER visits. The situation made me feel vulnerable and slightly out of control. The idea of pouchitis terrifies me because I know it can become chronic. It wouldn't be as bad as Ulcerative Colitis, but still would involve cramps and many many trips to the bathroom. I have had an amazing three years after my surgery and I was devastated at the prospect of another trying health condition. Although I knew I had the strength to rise to the challenge, I couldn't bear the thought of it. Fortunately I felt much better after a 48-hour protein shake diet. The experience reminded me how lucky I am to be doing exactly what I want - living independently, working, traveling, socializing, and most importantly, taking my health for granted.
July 4th in London! |