My main problem is getting up after I've been lying down. Since the stomach muscles required to get up are a bit much for my incision, I have a rolling method that is slightly ridiculous but effective. I am taking Percocet (oxycodone + tylenol; ask me for a review of narcotic drug classes and I can fill you in, or read a previous post about pain medications) around the clock because my incision starts hurting otherwise. Gradually I will decrease how many I take at one time and the frequency. I am going to the bathroom many times a day, but that is totally normal right after surgery and over time it will decrease. As it is, with no pain, I could deal.
I miss the nurses from Floor 5 North of UCSF! I got to know most of them and they took such great care of me. They also made me feel glamorous by telling me often how great I looked (aka: you are looking better than the other patients on this floor...the octogenarians).
Today I encountered an unsettling feeling: What do I do now? For the past couple years, I have always had a goal associated with my disease. It was usually among the following: get through today; get through this week; get through this semester; make it until surgery; make it until the next surgery, etc. Now I just have seemingly infinite time ahead of me. Suddenly the mentality of not being able to do certain things and limiting my expectations is gone. I am no longer a sick person; I'm a recently sick and recovering person who has no idea what to do other than read scifi books. So...I registered for the GRE. I got physical disability accommodations for extra bathroom breaks. This will give me a goal. Plus I have lots of time to study, if you haven't noticed. I didn't expect to have trouble adjusting to being normal but I guess that any adjustment, even if it's one for the better, can be troubling and simply take time. Once again, I have to welcome the change and resist the fear of the unknown future.
Now what you have all been waiting for:
Staples!!! And that's all the evidence of six feet less of intestine in the world. It's slightly orange from the iodine. |
This is pretty terrib...ly funny! Drunk leering pregnant lady recovering from a colectomy?
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Congratulations! I hope the transition home goes swimmingly and the J-Pouch quickly adjusts to it's new job (and you to it). Keep us posted -- I'm 6 weeks behind you...
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